The other day I had a follow up appointment with one of the first doctors that I met after getting my BRCA1 diagnosis. A year ago I was in his office an emotional mess. I had just had my first MRI, then the call that they wanted another, and an ultrasound. I have always said that I was most fearful of my ovaries. Not sure if it is because my grandmother died of ovarian cancer, or if it's because it is not very easy to diagnose....but I have always thought getting them removed was a priority.
I knew the importance of routine screening for my "upper half" as I like to call it :) So I just thought the MRI was routine. But the call I received after was anything but routine as well as the follow up MRI biopsy. I am so thankful that the biopsy never had to be done because they no longer saw any concerns, but I will never forget the emotional roller coaster it put me on. It helped me to decide that scheduling my surgeries sooner rather than later was a must for me.
I had my bilateral oopherectomy/hysterectomy on February 23 of this year and my double mastectomy on May 4. It hasn't been the easiest of recoveries. I've had plenty of bumps in the road. Somehow I always found myself in the 5% of the population who had to deal with this complication or that one. But I love where I am at now. I love the sense of peace I have today. I've come a long way in a year.
The best part of the visit was talking about follow up. Before I felt overwhelmed with the amount of surveillance testing I needed to stay on top of. But at this appointment he suggested that I see my gynecologist once a year, see my breast oncologist 1x next year....all very doable and a lot less urgency behind it.
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